August 12, 2014
Full moon over Harlem from St. Nicholas Park a couple nights ago.
Fun fact: The full moon of August is traditionally named the Sturgeon Moon.
August 10, 2014
I have had a lot of reaction in the past few days to that New York Times Magazine article concerning “The Kids Who Beat Autism.” Here’s about all I have left.
The parents, the teachers, the therapists and researchers without a clue who are celebrating “recovery” because they have, in their heads, defined autism as a fixed set of permanent inabilities—
-Are not the people doing the work of passing, and are not going to be the ones to find out first-hand just how long it isn’t actually sustainable.
-Are not the people who get told we’re too articulate to be autistic but have to ration our hours of speech per day.
-Are not the developmentally disabled women who suffer a sexual abuse rate of over 90%, no thanks to the compliance training that teaches that allowing others to control our bodies is desirable behavior.
-Are not the kids pulling themselves through school without disability accommodations.
-Are not the kids getting their supports pulled out from under them when they lose a diagnosis.
-Are not the kids getting chided and belittled because their challenges and oddity are now seen as choices of defiance or misbehavior.
-Are not the people being lied to about who they are.
-Are not the people who are going to wake up one day 20 years from now with no idea who they are or how they got there.
-Are not the people who will spend a year and a half having a meltdown with no idea of what’s happening or why.
-Are not the kids being taught that accepting yourself as you really are and as you really work, would be the worst possible thing.
-Or that the “optimal outcome” for you is to spend the rest of your life pretending to be something you’re not in order to uphold the illusions of the people around you.
-Are not the people who are going to have to re-learn where they belong in space and time and how to live there.
-They will not be the people giving their kids a community and a support system years from now. They will not be the ones who know what to do when they start having breakdowns and burnouts.
They will not be the ones supporting their kids in learning self-acceptance when all their passing skills fail because they are actually incompatible with functioning in the long term.
They will not be the people there to pick up the pieces.
There is, indeed, hope for the kids featured in this article, for joy and authenticity. This article could’ve come with a spoiler alert; we know the end of this story. We know it many times over.
It’s just not that these kids live out their lives as non-autistic people.